EHLERS DANLOS ZEBRA
TOP:”DOCTOR: ‘YOU SHOULD EXERCISE MORE’ “
BOTTOM:”DISLOCATE KNEE WALKING HOME”
Submitted by anesthesiadoll
have likely never felt the flood of relief that there is a WORD FOR WHAT YOU ARE after spending years wondering if you were broken, what was wrong with you, feeling ridiculously isolated and having other people complain about things you can’t change about yourself. If there’s a word for it, that makes it a real thing.
Knowing that I am real, that I am not alone, has done so much more for me than this idea that homogenizing everyone by refusing to recognize our differences is supposed to. I felt invisible and/or mocked for most of my life by people who thought we should all just be “people.” Why in the world would anyone think that could be a good thing for me now?
“Why does everyone need a label, GAWD!?” is code for “I haven’t given my self and who I am much thought, and the fact that you have, and have had to, upsets me. So stop it and be more like me, dammit!”
if i could live & die without ever hearing about people “kicking cancer’s ass!” or “beating disease!” or “refusing to let sickness beat them!” whether it’s something often terminal but occasionally curable or else a chronic illness that rarely kills but degrades over time, i’d be a hell of a lot happier.
& if i die & anyone says “she lost her battle with depression” or “she lost the fight with ehlers danlos” or anything like that, know that i will have preemptively asked my loyal surviving friends to break these eulogizers’ teeth.
BEING SICK IS NOT TANTAMOUNT TO LYING DOWN AND ASKING LIFE TO SHIT ALL OVER YOU.
FAILURE TO PRODUCE INSPIRATIONAL, MIRACULOUS RESULTS IS NOT AN INDICATION OF WEAKNESS OR LACK OF MOTIVATION OR INCOMPETENCE.